The film’s heroine lives in a Russian province; she’s 28 years old, a journalist, and she dreams of… bringing her fingers back. Nadya has a rare genetic disorder called the “butterfly syndrome:” At any touch, her skin peels off like pollen from a butterfly’s wings. Nadya knows that she is incurably ill, but she continues to fight for her right to live — and live like a normal person. This is a story of spirit, resistance, and faith.
Source : http://rusdocfilmfest.org/
